Expressing support for the designation of May 15, 2025, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.

Key Points

• This resolution asks the House of Representatives to officially name May 15, 2025, as a day to raise awareness for Prader-Willi syndrome. This rare genetic condition affects about 1 in 15,000 babies and causes a constant, dangerous feeling of hunger that can lead to severe obesity.
• The plan aims to help the 10,000 to 20,000 Americans living with this condition by encouraging early diagnosis. Finding the disorder early allows families to start treatments like growth hormones and find support groups that help manage the symptoms.
• It also calls for more medical research into the disorder. Because this condition affects how the body handles hunger and emotions, scientists believe that finding a cure could also help doctors better understand general childhood obesity and mental health issues.
• The resolution recognizes the hard work of parents, doctors, and support groups. It highlights the need for new ways to develop drugs for rare diseases so that patients can have better access to life-saving treatments.

Impact Analysis

Govbase has not yet run an impact analysis on this legislation.