Expressing support for a "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
Sickle Cell Disease: Awareness and Research Support
This bill is currently in the early stages of the legislative process and has been sent to the House Committee on Energy and Commerce for review. There are no upcoming votes or hearings scheduled at this time. The bill is considered active but is not currently moving forward.
Legislative Progress
Bipartisan health resolutions are almost always approved because they are symbolic and show support for patients without requiring new spending.
Key Points
- This resolution supports World Sickle Cell Awareness Day on June 19. It aims to teach more people about sickle cell disease, which is a blood disorder that can cause severe pain, organ damage, and early death.
- The resolution asks the government to make sure everyone has a fair chance to get new treatments. This includes expensive gene therapies that were recently approved to help cure the disease, especially for people using Medicare or Medicaid.
- It calls for a new group of government agencies to work together on these issues. This group would focus on making healthcare more fair and fixing the bias that many patients with this disease face when they try to get medical help.
- Sickle cell disease affects about 100,000 people in the United States, mostly in Black and Hispanic communities. The resolution highlights that nearly 1 out of every 13 Black babies is born with the sickle cell trait.
Impact Analysis
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Milestones
Referred to the House Committee on Energy and Commerce.
Submitted in House
Votes
No votes have been recorded for this legislation yet.
News
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Source Information
Document Type
Congressional Bill
Official Title
Expressing support for a "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
Data Sources
Sponsor
Cosponsors
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