Designating November 7 of each year as ''Shwachman Diamond Syndrome Awareness Day''.

Key Points

• This resolution would name November 7 as a day to raise awareness for Shwachman-Diamond Syndrome. This is a rare genetic condition that affects about 2,000 people in the United States. It primarily impacts a person's bone marrow, pancreas, and bones.
• The plan aims to help more people recognize the disease, which is often missed by doctors because it is so rare. It also encourages more research into treatments because there is currently no cure for the condition.
• The disease causes serious health issues like bone marrow failure and trouble digesting food. People with this condition have weak immune systems and a higher risk of developing blood cancers like leukemia.
• While medical care helps patients live better lives, the disease can shorten life expectancy by more than 30 years. The resolution notes that finding the disease early and getting specialized care is the best way to help children stay healthy.

Impact Analysis

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