Designating November 7 of each year as ''Shwachman Diamond Syndrome Awareness Day''.
Shwachman Diamond Syndrome: Awareness Day
This bill is currently in the early stages of the legislative process after being sent to the House Committee on Energy and Commerce for review. It is considered active, but there are no upcoming votes or hearings scheduled at this time. There is no companion bill listed for this proposal.
Legislative Progress
While this bill has support from both parties, many commemorative resolutions are introduced every year but never receive a final vote from the full House.
Key Points
- This resolution would name November 7 as a day to raise awareness for Shwachman-Diamond Syndrome. This is a rare genetic condition that affects about 2,000 people in the United States. It primarily impacts a person's bone marrow, pancreas, and bones.
- The plan aims to help more people recognize the disease, which is often missed by doctors because it is so rare. It also encourages more research into treatments because there is currently no cure for the condition.
- The disease causes serious health issues like bone marrow failure and trouble digesting food. People with this condition have weak immune systems and a higher risk of developing blood cancers like leukemia.
- While medical care helps patients live better lives, the disease can shorten life expectancy by more than 30 years. The resolution notes that finding the disease early and getting specialized care is the best way to help children stay healthy.
Impact Analysis
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Milestones
Referred to the House Committee on Energy and Commerce.
Submitted in House
Votes
No votes have been recorded for this legislation yet.
News
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Source Information
Document Type
Congressional Bill
Official Title
Designating November 7 of each year as ''Shwachman Diamond Syndrome Awareness Day''.
Data Sources
Sponsor
Cosponsors
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