FED UP with Bleeding Disorders Act of 2026

Key Points

• This bill aims to help women and girls get diagnosed and treated for bleeding disorders like hemophilia. Currently, many women wait 16 years or more for a correct diagnosis. This delay can lead to dangerous health problems during pregnancy or surgery.
• The Department of Health and Human Services would lead a major review of all federal programs to see how they handle these conditions in women. They will look at how doctors are trained, how easy it is for people in rural areas to get care, and how many women are included in medical studies.
• The government would launch a 10 million dollar per year national campaign to teach the public and doctors about the signs of bleeding disorders. This campaign will focus on reaching people in rural areas and providing information in different languages to make sure everyone can get help.
• Research shows that specialized treatment centers can lower the risk of death from these disorders by 40 percent. By improving early diagnosis, the bill hopes to prevent unnecessary surgeries and save billions of dollars in healthcare costs and lost work time.

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