Ellie’s Law

Key Points

• This bill, known as Ellie's Law, would provide $20 million every year from 2026 to 2030 for specialized medical research. The money would go to the National Institute of Neurological Disorders and Stroke to study brain aneurysms before they burst.
• The research will focus on a wide range of people, specifically looking at how age, sex, and race affect the risk of an aneurysm. Currently, women and minority groups like African Americans and Hispanics face a much higher risk of these medical emergencies.
• About 6.8 million Americans have a brain aneurysm that has not burst, but the government currently spends less than $3 per person on research. This bill aims to close that gap to help doctors find and treat these issues before they become fatal.
• Brain aneurysms are often deadly, with about half of all ruptures resulting in death. For those who survive, many face permanent brain damage and massive medical bills that can average over $114,000 per patient.

Impact Analysis

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