Improve the diagnosis and treatment of rare diseases by increasing research funding and patient access to specialized care.
One policy goal, tracked across every bill that has carried it.
What’s happening with RARE Act?
The RARE Act is currently tracked under S. 3716, which has been in the Senate Committee on Health, Education, Labor, and Pensions since January 27, 2026. The committee members must hold a vote to move the bill forward, but most legislation fails because committees choose not to act. No progress has occurred on this bill since January 27, 2026.
Updated July 9, 2026 · Generated by AI. Always verify with official sources.
Where it stands
Now carried by RARE Act (S. 3716 (119th)) →
Legislative Progress
How we got here
Every bill that has carried this goal, oldest first.
Died with Congress · Jan 3, 2025
Died when the 118th Congress ended without final passage. Bills must be reintroduced under a new number to be revived.
Reintroduced · Jan 3, 2025
Reintroduced from S. 1214 (118th), which died when its Congress ended.
S. 1214 (118th) →
Vehicles
Who’s behind it
Tammy Baldwin (D-WI)Wrote and sponsored the current bill.