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Congress·Passed Senate·S.Res. 104

Recognition: Rare Disease Day

A resolution designating February 27, 2025, as "Rare Disease Day".

about 1 year ago·View on Congress.gov
Part of: Senate Designates Rare Disease Day to Boost Awareness and Research
⏸

Stalled

No legislative action in over 90 days.

Legislative Progress

✓ Senate
House
President
Law

Key Points

  • This resolution officially names February 27, 2025, as Rare Disease Day. It is meant to bring attention to the more than 10,000 rare diseases that affect millions of people in the United States.
  • A disease is considered rare if it affects fewer than 200,000 people. While each disease is small on its own, about 30 million Americans—nearly 1 in 10 people—live with at least one rare condition.
  • The resolution points out that even though the government has approved hundreds of new drugs for rare conditions, about 95% of these diseases still have no approved treatment. This makes it very hard for families to find the medical help they need.
  • By creating this day, the Senate hopes to encourage doctors to find better ways to diagnose these illnesses early. It also supports more funding and research to find cures for life-threatening conditions that often affect children.

Milestones

1 milestone3 actions
Feb 27, 2025Senate

Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S1434; text: CR S1433)

Feb 27, 2025

Passed/agreed to in Senate: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent.

Feb 27, 2025

Introduced in Senate

Related Bills

1 bill
S.Res. 620Related bill

A resolution designating February 28, 2026, as "Rare Disease Day".

Feb 26 — Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S716; text: CR S711)

Source Information

Document Type

Congressional Bill

Official Title

A resolution designating February 27, 2025, as "Rare Disease Day".

Bill NumberSRES 104
Congress119th Congress
ChamberSenate
Latest ActionSubmitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S1434; text: CR S1433)

Sponsor

Cosponsors

(6)
D: 3R: 3

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