A resolution designating February 27, 2025, as "Rare Disease Day".

Key Points

• This resolution officially names February 27, 2025, as Rare Disease Day. It is meant to bring attention to the more than 10,000 rare diseases that affect millions of people in the United States.
• A disease is considered rare if it affects fewer than 200,000 people. While each disease is small on its own, about 30 million Americans—nearly 1 in 10 people—live with at least one rare condition.
• The resolution points out that even though the government has approved hundreds of new drugs for rare conditions, about 95% of these diseases still have no approved treatment. This makes it very hard for families to find the medical help they need.
• By creating this day, the Senate hopes to encourage doctors to find better ways to diagnose these illnesses early. It also supports more funding and research to find cures for life-threatening conditions that often affect children.

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