A resolution designating February 27, 2025, as "Rare Disease Day".
Recognition: Rare Disease Day
Stalled
No legislative action in over 90 days.
Legislative Progress
Key Points
- This resolution officially names February 27, 2025, as Rare Disease Day. It is meant to bring attention to the more than 10,000 rare diseases that affect millions of people in the United States.
- A disease is considered rare if it affects fewer than 200,000 people. While each disease is small on its own, about 30 million Americans—nearly 1 in 10 people—live with at least one rare condition.
- The resolution points out that even though the government has approved hundreds of new drugs for rare conditions, about 95% of these diseases still have no approved treatment. This makes it very hard for families to find the medical help they need.
- By creating this day, the Senate hopes to encourage doctors to find better ways to diagnose these illnesses early. It also supports more funding and research to find cures for life-threatening conditions that often affect children.
Impact Analysis
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Milestones
Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S1434; text: CR S1433)
Passed/agreed to in Senate: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent.
The Senate voted to approve this bill. If the House already passed it, it goes to the President.
Introduced in Senate
The bill was officially filed and given a number. It now enters the legislative queue.
Votes
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News
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Source Information
Document Type
Congressional Bill
Official Title
A resolution designating February 27, 2025, as "Rare Disease Day".
Data Sources
Sponsor
Cosponsors
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