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Congress·In Committee·H.Res. 1290

Recognizing the significant and often overlooked behavioral health needs experienced by individuals and families affected by rare diseases, and for other purposes.

Mental Health Support for Rare Disease Patients

This bill is currently in the early stages of the legislative process and is being reviewed by the House Committee on Energy and Commerce. No further actions are scheduled at this time, so the bill is not moving forward right now.

Legislative Progress

House
Senate
President
Law
Unlikely to pass

This is a non-binding resolution that expresses an opinion rather than changing laws or spending money. While it has bipartisan support, many resolutions never receive a full vote.

Key Points

  • This resolution asks the House of Representatives to formally recognize the mental health struggles of people living with rare diseases. It points out that millions of Americans, many of them children, face long delays in getting a diagnosis. These delays often lead to anxiety, depression, and trauma for patients and their families.
  • The proposal calls on federal health agencies to make mental health a priority in their research and care programs. It suggests that mental health services should be a standard part of treatment for rare diseases. This would help address the shortage of trained doctors and the high costs that families currently face.
  • It encourages the government to support peer support programs where patients and families can help each other. It also asks for better training for doctors and higher pay for mental health workers. These steps aim to ensure there are enough specialists available to help families dealing with rare medical conditions.

Impact Analysis

Govbase has not yet run an impact analysis on this legislation.

Milestones

1 milestone2 actions
May 14, 2026House

Referred to the House Committee on Energy and Commerce.

May 14, 2026

Submitted in House

Votes

No votes have been recorded for this legislation yet.

News

No related news coverage found for this legislation yet.

Source Information

Document Type

Congressional Bill

Official Title

Recognizing the significant and often overlooked behavioral health needs experienced by individuals and families affected by rare diseases, and for other purposes.

Bill NumberHRES 1290
Congress119th Congress
ChamberHouse of Representatives
Latest ActionReferred to the House Committee on Energy and Commerce.

Sponsor

Cosponsors

(1)
R: 1

Analysis generated by AI. Always verify with official sources.