Congress·In Committee
Medicare Coverage for ALS Specialized Care
ALS Better Care Act
Legislative Progress
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Key Points
- This bill would change how Medicare pays for care for people with ALS (Lou Gehrig’s disease). It creates a new $800 payment for clinics to provide a team of experts, including physical therapists, speech experts, and specialized nurses, all in one visit.
- Patients would not have to pay any out-of-pocket costs for these specific ALS services. This is meant to make it easier for families to afford the complex, multi-doctor care that the disease requires as it progresses.
- The policy aims to help specialized ALS clinics stay open and improve their services. Currently, many clinics struggle because Medicare does not pay enough to cover the cost of having many different specialists working together for one patient.
- Starting in 2027, the payment would be $800 per visit and would go up every year to keep up with rising medical costs. Clinics that participate in research trials to find a cure would also get extra funding to help cover their higher costs.
- The government would also be required to study why it is so hard to staff and run ALS clinical trials. This report would help find ways to speed up the search for new treatments and make it easier for patients in rural areas to get care through video appointments.
Milestones
2 milestones2 actions
Feb 3, 2026House
Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Feb 3, 2026
Introduced in House
Source Information
Document Type
Congressional Bill
Official Title
ALS Better Care Act
Bill NumberHR 7336
Congress119th Congress
ChamberHouse of Representatives
Latest ActionReferred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Sponsor
Cosponsors
(5)D: 3R: 2
Data Sources
Analysis generated by AI. While we strive for accuracy, this should not be considered legal or professional advice. Always verify information with official government sources.