Rep. Morrison Introduces Bipartisan Bill to Double Funding for Newborn Genetic Screening Programs
This bill is currently in the House Committee on Energy and Commerce. It has not seen any action since September 2025, which means it has been stalled for about nine months. The full committee must now decide whether to consider the bill before it can move forward.
This is a popular bipartisan program that has been successfully renewed in the past. It has support from both parties and addresses a non-controversial public health need for infants.
Scores run from -100 (strongly harmful) to +100 (strongly beneficial) for each group, combining impact, certainty, scope, and duration ratings of 1-5. How impact scoring works
New and expectant parents benefit from improved educational materials about newborn screening that are written at appropriate literacy levels. The bill ensures parents receive better counseling about the testing process, follow-up steps, and available support groups. This helps families feel more informed and empowered when navigating a positive screening result for their baby.
Forwarded by Subcommittee to Full Committee by Voice Vote.
Subcommittee Consideration and Mark-up Session Held
Referred to the Subcommittee on Health.
Sent to a congressional committee for expert review. The committee decides whether this bill moves forward.
Referred to the House Committee on Energy and Commerce.
Introduced in House
The bill was officially filed and given a number. It now enters the legislative queue.
The rare disease and public health communities are organizing to request the reinstatement of the ACHDNC and are looking toward congressional action through the Newborn Screening Saves Lives Reauthorization Act of 2025 to restore expert oversight and modernize the screening process.
The House Energy and Commerce Health Subcommittee advanced H.R. 4709, the Newborn Screening Saves Lives Reauthorization Act of 2025, by voice vote. The bill would renew federal support for state screening programs and modernize data tracking through 2030.
Representatives Kelly Morrison and Mike Simpson introduced a bipartisan bill to reauthorize the Newborn Screening Saves Lives Act, aiming to increase federal funding to $43 million annually and improve the speed of follow-up care for rare genetic disorders.
No votes or related bills recorded for this bill yet.
Document Type
Congressional Bill
Official Title
Newborn Screening Saves Lives Reauthorization Act of 2025
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